COVID-19 Registry

FAQs


Table of Contents:

  1. What was the COVID-19 Registry?
  2. What was the purpose of the COVID-19 Registry surveys?
  3. How was the COVID-19 Registry funded?
  4. What is the relationship between the COVID-19 Registry and the Texas Flood Registry?
  5. What will happen to data from the COVID-19 Registry?
  6. Can a healthcare provider or insurance company access data from the registry?
  7. Who can I contact if I have questions aboutthe COVID-19 Registry?
  8. Where can I access information about the COVID-19 Registry surveys?

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What was the COVID-19 Registry?

The COVID-19 Registry was a research project that aimed to provide real-time information on the spread of COVID-19, who was affected, and how.

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What was the purpose of the COVID-19 Registry surveys?

The COVID-19 Registry surveys served to track the spread of the virus over time and across geography and measured the economic and health impacts of COVID-19. It did this by collecting health, economic, behavioral, and exposure information from individuals who lived through the pandemic.

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How was the COVID-19 Registry funded?

The COVID-19 Registry was funded by the National Institutes of Health.

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What is the relationship between the COVID-19 Registry and the Texas Flood Registry?

The Texas Flood Registry is a project that supports disaster recovery by collecting health and housing information from Texas residents in storm-affected areas. To better serve the community, the Texas Flood Registry created the COVID-19 Registry in April of 2020. Unlike the regional focus of the Texas Flood Registry, the COVID-19 Registry took a national approach to combat the widespread threat of COVID-19. Although the COVID-19 Registry is no longer active, the Texas Flood Registry continues its work to understand the health and housing effects of major natural disasters. To learn more about the Texas Flood Registry, visit https://registry.rice.edu/tfr.

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What will happen to data from the COVID-19 Registry?

Data from the registry will be stored in a highly secure system built by Rice University. We plan to store the information we collect in this study for as long as researchers are interested in using it. Findings from the registry will be published but will not include any information that would identify you or any other participant. While confidentiality can never be guaranteed, the way we store and share the data has been designed to make sure that data will not be seen by those who do not have permission to see it.
If researchers wish to use information from the registry, they must receive approval from the registry team at Rice University and their home organization. They will also need to show how their research could benefit communities. Future research may look at the economic and health impacts of COVID-19, as well as ways to address them and prepare for future public health emergencies.

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Can a healthcare provider or insurance company access data from the registry?

No. Only approved COVID-19 Registry staff and affiliates can access personally identifiable information. Only data that have been summarized will be made public.

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Who can I contact if I have questions aboutthe COVID-19 Registry?

You can send an email to Covid19Registry@rice.edu. Though you should identify yourself in the email, please do not provide any personal health information.

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Where can I access information about the COVID-19 Registry surveys?

To view information about the COVID-19 Registry surveys, visit Disaster Research Response (DR2) .


The COVID-19 Registry is a joint venture of the Children’s Environmental Health Initiative, Chambers County, Corpus Christi Nueces County Public Health District, Environmental Defense Fund, Fort Bend County Health & Human Services, Gulf Coast Center for Precision Environmental Health, Harris County Public Health Department, Houston Health Department, Montgomery County, Texas Parks & Wildlife Department, Victoria Emergency Management, and Rice University. Please send any comments or questions to Covid19Registry@rice.edu. — Privacy Policyv1.14